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Kathianne
05-03-2009, 02:47 PM
Many of you know, and generously donated to brain tumor research for my nephew, Jay who was diagnosed with a non-cancerous brain tumor the day after my dad's funeral in September of 2007.

Well, that was hard, for Jay and the rest of the family and friends. He underwent the first craniotomy about a week later, at Loyola. He got married about 6 weeks later, to Angela, who's been a rock for him. An inspiration to get well, so that their marriage could happen. We all had a blast, Jay's scars and all. ;)

Last Spring, Jay got us altogether for Strides to Save lives (http://cinnfoundation.org/images/walkpics-2008/index.html). We had a great time, and realized how lucky Jay had been.Shortly thereafter Jay had a problem and a second crainotomy was completed in July. Obviously these have not been easy times. Yet, for their first anniversary, Jay and Angie were able to honeymoon in St. Lucia and had a wonderful time.

However, even the second opening of skull didn't make the problems stop. The fluids kept building in his brain, so from Thanksgiving to Christmas Eve, he underwent radiation at Mayo, which offered they hoped, an alternative to the necessity of a permanent stent. While Jay handled all the illness that came from that, it seems the stent will be necessary in all likelihood, as the fluids continue to build.

Jay would be the last to say he has it so bad, because of those he's had contact with. While his tumor is not cancer, though still active (and causing a multitude of problems), he realizes the difference which is why he also got us all involved with the American Cancer Association regarding brain tumors. This weekend I came across a site, that Jay would be down with. A little guy, but a tiger (http://caringbridge.org/visit/evanpertile). Jay was touched by some of the children at Mayo, I think Evan would hold a special place. What a kid, what a family. Then there is how our armed forces came out to support this little boy! I'm telling you, 10 minutes on that site, you'll be kissing your kids and grandkids!

Brain tumors, cancerous or not, cause huge problems for those afflicted. On May 30, the 5th annual 'Strides to Save Lives' (https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=309995&lis=1&kntae309995=1A4E5295B9DE452D85A25468735B5F85&supId=255216200)will be held. If you can give something, please do. If you are blessed to do more, give here. (http://www.stjude.org/donate) If you can't, please say a prayer for Jay and Evan and all who are affected by this problem.

Jeff
05-03-2009, 04:58 PM
Kat my Prayer's will be with Y'all, I hope everything turns out fine

Kathianne
05-03-2009, 05:44 PM
Kat my Prayer's will be with Y'all, I hope everything turns out fine

Jeff, thank you. Prayers are even better than $, though they are needed to do the work God allows. If money is not possible, prayers are certainly warranted. He cannot go through any more brain surgeries, so if the stent doesn't care for it, I guess that is the end. Loyola didn't think the radiation was a go to, seems they were right. In any case, bought him another 6 months.

glockmail
05-03-2009, 06:17 PM
Prayers here. I ran Race for the Cure yesterday. I expect that there is significant technology exchange between the types of cancer.

My prayers for Jack Kemp as well.