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SassyLady
11-10-2017, 01:26 AM
So, in August I had a blood test that showed I am producing an abnormal amount of red blood cells (polycythemia). After having ultrasound, pulmonary testing, a CT scan, a PET scan and visiting with a cardiologist for stress test ...no results visit yet), a urinologist, and an oncologist, I have now been scheduled to have an octreotide scan next month.

This will be the third time in three months that I'm going to be having radioactive material injected into my veins and then having these large machines take pictures of my innards.

I'm amazed at all the additional things that they have found inside but don't present problems (i.e., multiple parapelvic cysts) and yet they still haven't found the exact thing they're looking for which is some type of an NET (neuro-endocrine tumor). So far my kidneys, bladder, liver and lungs look good. This next test will be looking at my pancreas and my intestines. Earlier this year I had a colonoscopy and an endoscopy and everything looked good there as well. However, I'm exhibiting symptoms of a carcinoid tumor so we've been trying to find out where it is.

So keep your fingers crossed that this test will show where it's at so we can deal with it and get on with life. I'm tired of being injected with this radioactive material because I can't be around my great-grand baby for at least 24 to 48 hours after I have those tests. If they don't find it this time around I'll probably have to have a bone marrow biopsy.

Plus, I'm tired of glowing in the dark. :slap:

High_Plains_Drifter
11-10-2017, 02:03 AM
It's the CAT SCAN that needs that injection... why haven't you just had an MRI? (Magnetic Resonance Imaging)

SassyLady
11-10-2017, 02:22 AM
It's the CAT SCAN that needs that injection... why haven't you just had an MRI? (Magnetic Resonance Imaging)

Had injection for CT and PET scan and now this octreotide scan will be 3rd time for injection.

No one has mentioned MRI. Guess because each injection is looking for something different. Found bone lesions on spine from CT. The PET showed the parapelvic cysts. So far those are not of concern.

CSM
11-10-2017, 07:07 AM
Dammit Sassy! Hope they find whatever it is and fix it. We need you around here ya know!

High_Plains_Drifter
11-10-2017, 09:04 AM
Had injection for CT and PET scan and now this octreotide scan will be 3rd time for injection.

No one has mentioned MRI. Guess because each injection is looking for something different. Found bone lesions on spine from CT. The PET showed the parapelvic cysts. So far those are not of concern.
Well, I sure hope they find whatever it is they're looking for.

I wish you the best of luck and a full recovery from whatever ails you.

Abbey
11-10-2017, 09:11 AM
Not knowing is so frustrating. I will pray for solid results, Sassy.